Project Title – 100 Stories Project
Download booking and consent form
Help us to learn more about the changes that take place when young people move over to adult services.
This also known as Transition.
You are being invited to take part in the 100 Stories Project.
Before you agree to this, it is important that you understand the purpose and nature of the Project and what you will be involved in, if you agree.
Please read this leaflet carefully and feel free to ask if you need more information or if there is anything you do not understand. Contact details are given at the end of this leaflet.
Purpose of the Project
As a Health Board we want to make sure we are developing the right support for young people and their families.
In order to do this, we want to learn and understand what thoughts you have as
- Young people
- Parents
- Carers
- Guardians
- Staff who work with young people
in order to create ideas of how to change our services.
In February 2022 a report from the Welsh Government found that supporting young people to move from children to adult services was important for improvement.
Another report found that young people felt that there were difficulties such as being referred to adult services, the lack of support whilst waiting and feeling little or no control over the process.
The 100 Stories Project will support anyone who wishes to become involved to develop a story of their own.
The project will include training to teach you lots of new skills.
Creating a “Public Narrative or Public Story”.
A Public Story is a method of creating a story, through recording the information given in the way that you are most comfortable. This can be through
- Film
- Audio recording
- Written forms
- Poetry
- Blogging
- or other artistic methods.
The stories made through the project will then act as a tool for those taking part to continue to work together.
And to understand what the challenges are currently and how to build on the positives to change services in the future.
Recording the ideas that come from these sessions will allow us to work together to create a plan, that we will share with the services.
Anyone involved will have the chance to carry on working on any other projects that come out of this work with the health board and partners.
Why have I been chosen to take part?
You have been chosen to take part in the project because you are a
- Young adult
- Parent
- Carer
- Guardian
- Staff member
Who have had experiences of children’s services.
A young adult must be between the ages of 18 to 25 to take part.
Do I have to take part?
Taking part is up to you. If you do agree to take part, you will be asked to sign a consent form and be asked to attend a meeting.
If you agree to take part, you can change your mind at any time, without giving a reason.
We will be asking for your consent again once you have completed your story for sharing the final version.
What will taking part involve?
You will be asked to take part in 3 full days, face to face training sessions, where we will work with you to develop your skills and story.
You will need to attend another 3-4 follow up sessions, for about 2.5 hours, these could be online or face to face.
These sessions will focus on understanding what the stories are telling us and help us to make a plan.
You will then be given the option to attend ongoing meetings that will be held every other month, online.
What are the potential risks to taking part?
The project does involve sharing experiences with others, who you may not have met before and does involve creating a record of your experience via
- Filmed
- Audio
- Artistic
- Written records
This information will be safely kept and your consent will be needed before this information is shared.
It is important to say that this can be an emotional experience for those taking part and can draw on memories and feelings that in some cases may be upsetting.
It is important that you do not take part in the project if you feel that this would cause you upset or be unsupportive to any current support you are receiving.
We ask anyone interested in taking part to seek advice from their Doctor or key worker before they become involved in the project.
You can leave at any time, and we have made sure everyone will be treated with respect, and have access to support should they need this.
Safe spaces will be provided to discuss experiences.
We will be creating a report to share this work with the health board and members of the public.
In this report we would like to share the full recordings including all aspects of the work we do with you. We will ask for your consent for this at every step of the project.
It is important that you know that this report and will enter public spaces and to members of the public. Once the information is in the the public spaces we will have no control over how it is shared and used.
We could not guarantee its removal from public access and there are risks that comes with this.
Including
- Online bullying
- Changing some of the information
- Sharing in other spaces online
We ask you to consider our consent forms very carefully and to think about the long-term risks of agreeing to share your information in the way described above.
What are the benefits of the project?
There will be many benefits of the project. Those taking part will have the chance to help work towards a new plan for the Transition services in North Wales.
Another benefit of taking part in this project is the chance to add ideas to developing the understanding of the services users.
You will provide us with information on how your experiences and help towards the plan for the future. You will have the chance to learn new skills and help create change.
You will be given the chance to continue to work with the Health Board on future projects.
Will my participation be confidential?
Yes, it will be, and this is really important when doing a project like this. All information about you will be kept confidential.
We will be able to keep your details out of your story if you want us to.
There may be some details which others may know is your story and then realise it is you.
For example a nurse or doctor may remember your case.
This will be carefully managed by the team who will work with you to check anything before it is shared publicly.
All information about you will be stored securely in line with Data Protection.
All data, no longer needed for the project and report will be destroyed once our report has been completed.
What will happen to the final report?
We plan to share the report with
- Local Authorities
- Welsh Government Departments
- Schools and Educational Settings
- Third Sector Organisations
- NHS Health Boards
- Public Health Wales and The Bevan Commission.
The report will also be accessible to members of the public.
What will happen if I want to stop taking part?
You can stop at any time. This means that if you do change your mind then you can contact the team to let them know.
You do not need to explain your decision. Any information you have provided to us will be deleted and no longer held on file.
You can let us know if you change your mind and want to stop working on the project by emailing the project lead on the email address below.
Christy.hoskings@wales.nhs.ukAgain, no reasons need to be given and you can leave the project at anytime
What if I am unhappy or if there is a problem?
If you are unhappy, or if there is a problem, please feel free to let us know by contacting the project leads
Christy Hoskings
or
Eirian Wynne
Eirian.Wynne2@wales.nhs.uk and we will try to help.
If you remain unhappy or have a complaint which you feel you cannot come to us with then you should contact the Concerns Team by phone on this number
or email them on
BCU.ComplaintsTeam@wales.nhs.uk
